"I work in healthcare, often with rare disease patients. People will often ask me if I find it to be depressing, and yet, honestly, it is quite the opposite.
I once spent an afternoon photographing a four-year-old with a rare and physically debilitating disease for which there was no treatment at the time. When I arrived at her house, she grabbed my hand, brought me to her room and said, “Let’s play princess.” Donning a princess dress she danced and twirled while I photographed – to her during those few hours, she was a princess.
Even more rewarding was almost a decade later when I met her again after having undergone a new therapy. Distant and aloof, she was a typical teenager, and I smiled thinking about her dancing."
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